Epilepsy Ontario Client Survey

Epilepsy Ontario is developing an Ontario Strategy for Clinical Epilepsy Care. It will be discussed at our next Annual General Meeting. Eventually, we hope that it will be adopted by the Provincial Ministry of Health.

We would like to thank you for helping us help people living with epilepsy and taking a few moments to complete this questionnaire and returning it to us.

1. Does the general public have enough information about epilepsy? Yes No Don't Know

2. Do paramedics have enough information about epilepsy? Yes No Don't Know ...and especially about non-convulsive seizures? Yes No Don't Know

3. Does the staff of hospitals (excluding physicians) have enough information about epilepsy? Yes No Don't Know ...and especially about non-convulsive seizures? Yes No Don't Know

4. Do physicians (excluding neurologists) have enough information about epilepsy? Yes No Don't Know ...and especially about non-convulsive seizures? Yes No Don't Know

5. Do neurologists that are not specialized in epilepsy have enough information about epilepsy? Yes No Don't Know ...and especially about non-convulsive seizures? Yes No Don't Know

6. Do hospitals have enough information about how to stop prolonged seizures (status epilepticus)? Yes No Don't Know

7. Did you have problems getting diagnosed? Yes No Don't Know Was this especially a problem if you have non-convulsive seizures? Yes No Don't Know

8. Did your diagnosing doctor refer you to a neurologist - assuming he/she wasn't a neurologist? Yes No Don't Know

9. Are there enough neurologists specialized in the treatment of epilepsy? Yes No Don't Know

10. Did your physician/neurologist refer you to an Epilepsy Chapter for help and support? Yes No Don't Know

11. Have you had to wait for tests (MRI, etc.)? Yes No Don't Know

12. What is your experience with generic as opposed to brand name drugs?

13. What is your experience with drugs being discontinued by drug companies?

14. Has your physician/neurologist discussed the effects of seizures/medications on your life? Yes No Don't Know

15. Has your physician/neurologist asked you about seizure-related problems, such as anxiety, depression, memory or sexual problems? Yes No Don't Know

16. Has your physician/neurologist ever treated – or offered to treat – you for seizure-related problems, such as anxiety, depression, memory or sexual problems? Yes No Don't Know

17. When disclosing your condition do you refer to it as: intractable epilepsy a seizure disorder epilepsy a neurological disorder other (explain below)

18. Are there any other issues you'd like to raise?

19. Please enter your postal code (for statistical purposes only):

Thank you for completing the survey Please click the "Submit" button below to send us your answers.