Epilepsy Niagara
Downloads
Education Comes to Niagara (pdf)
Membership Form (pdf)
"Thinking About Epilepsy" Grade Five Education
Attention grade five teachers: your school board has approved the content of this 40 minute interactive classroom presentation designed to increase knowledge about seizures and decrease stigma. The facilitator uses props, EEGs, the Brain Game, Famous People Game, video clips and puppets to reinforce specific expectations. Click on the forms below to book a presentation.
Public School Presentation Booking Form (pdf)
Catholic School Presentation Booking Form (pdf)
Mission Statement
Epilepsy Niagara is a non-profit, charitable agency dedicated to improving the quality of life of people in the Niagara region who are affected by epilepsy. Epilepsy Niagara provides support services, education and public awareness to all persons living with epilepsy and their support network. The term Niagara region refers to all municipalities in Niagara.
Support Services- Individual and Family emotional support
- Peer to Peer Network
- Epilepsy Wellness Workshops
- Information and Referral
Education and Public Awareness- Community and School presentations
- In-staff training (for businesses, schools etc.)
- Educational Resource Library
- Pamphlets and videos
- Information Forums
- Think Lavender - Think Epilepsy Campaign
Community Events
Happy Laughternoons!
Wednesday afternoons from 2:00 to 4:00 pm
Come join us for some fun, laughter and fellowship on Wednesday afternoons from 2 – 4 pm. This is Epilepsy Niagara's peer drop in in Niagara Falls. We are looking at ways to make this drop in time fun and encouraging for you. What would you like to share? Perhaps a game, a craft, a joke, a question or concern … Let us know what you would like to see happening on Wednesday afternoons. For more information contact support@epilepsyniagara.org or 905-353-1096. |
Peer to Peer Support Program
People of all ages want to help each other, yet often don't know how to do this. Peer helping is simply helping other people. When people experience frustrations, worries, concerns, and other life events, they typically turn to their friends, or peers, not professionals, for help, advice, practical assistance and support.
Peer Support Volunteers are provided with comprehensive training and supervision and will be matched with someone based on their personal experiences with epilepsy. Peers may communicate by telephone, or internet, as often as they deem appropriate.
If you are interested in connecting with someone who has similar experiences to yours, then join our Peer Support Network by contacting
support@epilepsyniagara.org or calling us at 905-353-1096.
Volunteer Peer Support Registration Form (PDF)
Taking Control and Living Well with Epilepsy
The Taking Control of your Wellness" workshop series is a skill development course for adults and youth who are directly affected by epilepsy. This workshop will consider the entire individual to assist you in examining how your lifestyle relates to your seizures frequency and overall sense of wellness. The workshop will address:
- How to engage your support system
- Understanding epilepsy from a medical approach
- Identifying and avoiding triggers to seizures
- Tracking emotions and their effect on wellness
- Managing your external environment
- Managing your internal environment
- Enhancing control of stress in your life.
- Celebrating the uniqueness & diversity of Epilepsy
- Developing and implementing your wellness plan.
The session will be 1-2 hours in length, and will be held once a week for 11 weeks. This program will be offered on a regular basis program. Please register online and we will inform you of when our next workshop series begins. This workshop series is free for members and $25 for non-members.
Please register to attend the next January workshop series sessions:
Brainstorm: A Children's Program
This program is for children ages 5 to 12 and who have epilepsy or have a family member living with epilepsy.
This children's program is 6 sessions in length. The program will address:
- What is epilepsy?
- First aid for Seizures
- Dealing with Emotions
- Relationships/Friendship
- Communication
Please contact the office to put your child on the program list. When we have large enough interest in the program you will be contacted.
Awareness Groups
The Awareness groups are topic based with the opportunity for discussion. The groups are confidential and are open to anyone affected by epilepsy. This includes adults with epilepsy, caregivers, parents, spouses etc. If you would like to learn information about a specific topic, please contact Melissa to submit a request.
R.S.V.P. For planning purposes. Simply call 905-353-1096 or email
info@epilepsyniagara.org
Please consult the office for dates and locations.
Become a Member of Epilepsy Niagara
Please contact
Melissa to register as a Member and to provide your contact information (address, phone number and email address). As a member you are entitled to:
- Monthly Newsletter via email and/or mail
- Epilepsy Ontario's newsletter, Sharing
- Access to educational information about epilepsy
- Ensures that you will be on our mailing list.
- Ensures that you will receive notice of upcoming programs and special events.
- You will be entitled to access Epilepsy Ontario's resource library and their social events (Spike and Wave Camp, Winterfest, Summerfest etc.)
Get involved by becoming a volunteer
Volunteer Profile Form
As a grassroots organization, there are many areas where volunteers can make a difference in the lives of those who are affected by epilepsy. Listed below are some volunteer suggestions. Please contact Melissa to set up an interview to discuss these opportunities further.
- Board of Directors - for volunteers who are looking to assist in giving direction and support for a new organization. A knowledge base in one or more of the following areas is preferred, but not limited to: accounting, legal, education, health/social services, medical and business.
- Advancement/Fundraising Committee - for volunteers willing to assist in the advancement of Epilepsy Niagara through fundraising, marketing and advertising
- Epilepsy Ambassador - responsible for raising awareness about epilepsy within his/her community through the distribution of epilepsy pamphlets, posters, presentations etc.
- Volunteer Coordinator - for a volunteer willing to recruit, coordinate and organize volunteers for Epilepsy Niagara
- Support Group and Child and Youth Service Committee - this committee is responsible for the development of programs for individuals affected by epilepsy. This committee will consist of volunteers who have some experience in the fields of psychology, social work, social services, and child & youth studies.
- General Volunteer Opportunities - many spaces for volunteers willing to assist in all events, office administration etc.
 | Epilepsy Niagara's Volunteer OrientationPlease sign up for to learn more about Epilepsy Niagara's volunteer opportunities and see how you can make a difference in this agency. |
Join Our "Think Lavender - Think Epilepsy" Campaign
The "Think Lavender – Think Epilepsy" campaign is an international initiative to increase awareness about epilepsy. The lavender ribbon campaign will allow us to communicate the message about what epilepsy is and how it affects peoples lives.
Support the agency financially
There are many costs in starting and maintaining a non-profit agency. In order to provide service to those affected by epilepsy, financial support is needed.
- Donations over $10 will receive a Tax Receipt [Epilepsy Ontario's charitable business number is 11800-0844-RR0001].
- Cheques should be made out to "Epilepsy Niagara".
Suggestions in how you can support us financially:
Lifeline
Lifeline is an easy-to-use personal response service that lets you summon help any time of the day or night - even if you can't speak. All you have to do is press your Personal Help Button, worn on a wristband or pendant, and a trained Response Centre Associate will ensure you get help fast.
www.lifeline.ca
Epilepsy Niagara is funded by the United Way campaigns
of Niagara Falls, Niagara South, Greater Fort Erie and St. Catharines & District
